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Thalassemia Society of Mauritius

The Thalassemia Society of Mauritius is committed to supporting patients with thalassemia and other genetic haematological disorders. Thalassemia is a genetic blood disorder affecting the production of haemoglobin. We focus on raising awareness, providing education and resources, and advocating for improved medical care and facilities. Our activities include organising blood donation drives, awareness campaigns, and community support programmes to enhance the quality of life for affected individuals. By creating a network of care and support, we empower patients and their families to effectively manage their conditions and lead healthier lives.

 

Accreditation Number with the National Social Inclusion Foundation: NCSRF/2017/0135

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Services offered
  • Providing moral support to individuals with thalassemia and assisting their families in overcoming emotional and psychological challenges.
  • Counselling and educating thalassemia patients and their families on disease management.
  • Conducting blood donation drives for thalassemia patients.
  • Advocating for better conditions for transfusions and treatment.
  • Raising funds and providing equipment and medications for the most economically disadvantaged Thalassemia patients.
  • Raising awareness about screening and treatment options for thalassemia.
  • Promoting collaboration with the Ministry of Health and Quality of Life, NGOs, groups, and organisations such as the International Thalassemia Federation.
  • Supporting patients with other genetic haematological disorders.

Beneficiaries: In 2010, the association had around 50 members. By July 2016, there were 168 members and 91 patients. The Thalassemia Society of Mauritius has grown significantly over the past few years, now supporting a larger community of members and patients.

History

Registered as an association in October 2009, the Thalassemia Society of Mauritius was officially launched on April 19, 2010, in collaboration with Apollo Bramwell Hospital (now Wellkin Hospital).

  • 2011: Organised a two-day workshop led by a haematology specialist from Delhi, India. Following this workshop, a treatment protocol was developed in collaboration with the Ministry of Health and Quality of Life. This protocol, now official, has been implemented in all hospitals across the country.
  • 2012: Established the first specialised Thalassemia Day-Care unit at Jawaharlall Nehru Hospital in Rose-Belle.
  • 2013: Held another two-day workshop with doctors from the Tata Medical Centre in Kolkata, including a bone marrow transplant specialist and a haematologist.
  • 2014: Established the second specialised Thalassemia Day-Care unit at Dr A.G. Jeetoo Hospital in Port-Louis.
  • 2015: Established the third specialised Thalassemia Day-Care unit at SSRN Hospital in Pamplemousses and conducted a one-day workshop to review the existing protocols and guidelines for the national management of Thalassemia.
Objectives
  • To advocate for a specialised and dedicated room for patients with Thalassemia and other blood disorders in every hospital across the island.
  • To support and guide parents and patients, including providing general check-ups for a comprehensive health assessment.
  • To organise blood donation drives.
Main achievements
  • Establishment of a dedicated room for patients with Thalassemia and other blood disorders at Rose Belle Hospital.
  • Organisation of annual health assessments for all patient members of the association.
  • Organisation of relaxation days for patients and their parents.
  • Hosting of workshops with foreign experts.
  • Conducting of workshops with psychologists, nutritionists, and local doctors for the healthy development of children and adults with Thalassemia.
  • Development of a treatment protocol in collaboration with the Ministry of Health and Quality of Life for the care of Thalassemia patients.
Sources of funding

Our funding comes from various generous sponsors, including:

  • Corporate sponsorships
  • Community contributions
  • National Social Inclusion Foundation (NSIF)